PARTNERS

This page provides Links to other .ORGS that StopCaidnow approves of, or has partnered with. Please take time to visit their sites as well. It is together that we will make a difference!

The Global Genes Research Fund
Global Genes Website 

Lisa Moreno-Dickinson is on the Advisory Board
for the Global Genes Research Fund

 
Chance von Spiessbach
www.chanceplus1.com
The WASOG (World Association for Sarcoidosis and Other Granulomatous Disorders)
WASOG Website
ISSAID
The ISSAID website gathers resources related to the systemic autoinflammatory diseases in order to facilitate contacts between interested physicians and researchers. The website provides support to share and rapidly disseminate information, thoughts, feelings and experiences to improve the quality of life of patients and families affected by systemic autoinflammatory diseases, and promote advances in the search for causes and cures. Specific features of this website include basic information, society membership, information related to laboratories such as quality control schemes for molecular diagnosis, patient registries, an image library, previous and future meetings, and a information forum.
ISSAID Website
Genetic Alliance, Inc.
Main office: 202.966.5557
Fax: 202.966.8553
Email: info@geneticalliance.org
Genetic Alliance Website
National Organization for Rare Diseases (NORD)
55 Kenosia Avenue,
PO Box 1968 Danbury, CT 06813-1968
(203) 744-0100 

Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax Number:(203)798-2291
NORD Website
Foundation for Sarcoidosis Research
Foundation for Sarcoidosis Research Website
Office of Rare Desease Research
ORDR Website
Center for Arthritis Immunology & Environmental Diseases (CAIED)
Justin’s Hope | The Task Force for Global Health
Justin’s Hope Website
Founded in 2003, the Task Force’s Justin’s Hope project focuses on HOPE: Healthcare Openness, Professionalism and Excellence. Through the efforts of Justin’s Hope, the Task Force provides education, research and reform toward quality and compassion in healthcare delivery.
Friend of Rare Disease Day 2011 – stop childhood autoinflammatory
Friend of Rare Disease Day Website
The Melungeon Health Education and Support Network:
http://melungeonhealth.org 
Familial Mediterranean Fever blog – ‘my story’ w/ FMF, and LOTS of medical documentation, charts etc.
http://familialmediterraneanfever.blogspot.com/
FMF Support mailing list:
fmf_support-subscribe@yahoogroups.com
FMF – Rare Disease Communities
Office of Rare Diseases Research
Office of Rare Diseases ResearchWebsite